Celebrated journalist Ken Mijungu has come out to defend his best friend, Dennis Okari after Kenyans bashed him for not being there for his daughter. This was after a revelation by Betty Kyallo on Monday, December 30, that left many in tears following her daughter’s health.
Kyallo shared the tough moments she went through during the year when her daughter with Okari was diagnosed with a rare autoimmune disease called ADEM (acute disseminated encephalomyelitis). According to Betty, the disease is marked by a sudden widespread attack of inflammation in the brain and spinal cord called ADEM (acute disseminated encephalomyelitis), which in turn damages the protective coating of the nerve fibres called myelin that acts as conductors to all muscles for basic human functionality. The TV girl explained how Ivanna spent some time in ICU as the condition worsened and how it has not been a walk in the park for her entire family. Betty revealed how her daughter stopped talking, eating and stopped having some mobility functions due to the condition.
As another year once again comes to an end I can’t help but reflect and look back as this year has been a special one; difficult and extremely challenging to me and my family. It took a lot of convincing for me to share what I am about to share due to its sensitivity and privacy in nature, however I feel I won’t have done my duty to thank God for not abandoning us If I decide to be silent about it. If at the end of this message I will give heart to someone going through the same challenge, anxiety, fear and Loneliness I’ll sleep better. Early this year my sweet lovely daughter Ivanna was diagnosed with a rare autoimmune disease. It was marked by a sudden widespread attack of inflammation in the Brain and spinal cord called ADEM (acute disseminated encephalomyelitis)
Basically this disease damages the protective coating of the nerve fibers called myelin that act as conducters to all muscles for basic human functionality. What this means is that one day my beautiful four year old daughter stopped walking, soon stopped talking, soon stopped eating soon was so drowsy couldn’t keep her eyes open and thereafter went into a deep coma that she had to be taken to ICU and put on life suppport for a whole month. For the Larger part of her diagnosis doctors couldn’t even figure out what was wrong with her. We did numerous tests looking at every organ and blood but for a long time of hospitalization in Nairobi Hospital Children’s ward we couldn’t find it. All the while she kept deteriorating every day losing one function after another. Today she could talk the next day she couldn’t make a sentence. Etc. Thanks to God and the brilliant doctors that were so kind and gracious in their work and how they diligently treated my daughter especially Dr Ismail primary ICU pediatric carer for my daughter, the overall lead Neurologist carer Dr Oyatsi and ICU nurses, Ward doctors and nurses we finally found a name to what was eating her. ADEM. As a mother this was my lowest time, I was crushed every day seeing my daughter wasting away and Couldn’t do anything. Full post on my Verified Facebook Fan page BETTY KYALLO. SHE IS FULLY HEALED. AMEN! 😊